A face for Picasso : coming of age with Crouzon syndrome / Ariel Henley.

By: Henley, Ariel, 1991-Material type: TextTextPublication details: New York : Farrar Straus Giroux,, 2021Edition: 1st edDescription: 378 p. ; 22 cmISBN: 9780374314071Subject(s): Henley, Ariel, 1991- -- Health -- Juvenile literature | Henley, Ariel, 1991- -- Health | Craniofacial dysostosis -- Patients -- Biography -- Juvenile literature | Craniofacial dysostosis -- Patients | Women -- BiographyGenre/Form: Autobiographies.DDC classification: 617.5/2 | B LOC classification: RD763 | .H38 2021Awards: Schneider Family Book Award, 2022Summary: "At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome--a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it. Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again"--Publisher.
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Includes bibliographical references.

School Library Journal, March 2022

Booklist starred, November 2021

Bulletin of the Center for Children's Books starre, March 2022

Publishers Weekly, October 2021

Kirkus Review, October 2021

"At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome--a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it. Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again"--Publisher.

Young Adult Follett School Solutions.

880 Lexile.

Schneider Family Book Award, 2022

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